National Haemophilia Council
The National Haemophilia Council was set up under S.I. no. 451 of 2004 following the Report of the Tribunal of Inquiry into the infection with HIV and Hepatitis C of Persons with Haemophilia and Related Matters (the Lindsay Report).
The Lindsay Report recommended that “A Co-ordinating Committee in regard to the treatment and care of persons with haemophilia should be established with representatives from the various organisations and interest groups in relation to haemophilia care”.
The Council comprises 11 members, including the Chairperson and is a forum through which members of the Irish Haemophilia Society, haemophilia treaters and healthcare administrators advise and make recommendations to the Minister for Health on all aspects of haemophilia, on its own initiative or at the request of the Minister.
Objectives of the National Haemophilia Council
To advise and make recommendations to the Minister for Health on all aspects of haemophilia, on its own initiative or at the request of the Minister, and in particular on:-
- the care and treatment of persons with haemophilia;
- protocols for treatment of haemophilia;
- health services (including counselling services) for persons with haemophilia;
- education and training of staff who provide services for persons with haemophilia;
- education and health promotion for persons with haemophilia and their families;
- the changing needs of persons with haemophilia, in order to help ensure that health services respond effectively to such changing needs;
- developments arising from research into haemophilia;
- appropriate support services for the families of persons with haemophilia.
Current Board Membership