Press Release

Minister for Health Marks World Haemophilia Day 2019

Minister for Health, Simon Harris T.D. has today marked World Haemophilia Day (Wednesday April 17th).
He said: “Ireland can be very proud of the level of care provided to people with haemophilia and other bleeding disorders in Ireland. The services provided in our three Comprehensive Care Centres – the National Coagulation Centre in St. James’ Hospital in Dublin, the Coagulation Centre in Cork University Hospital, and Our Lady’s Children’s Hospital in Crumlin – is viewed internationally as among the best in the world.”
Since 1989, the 17th of April has been recognised as “World Haemophilia Day”, to raise awareness and bring understanding and attention to the issues related to haemophilia and other bleeding disorders to the wider public.

The theme of this year’s World Haemophilia Day is “Reaching Out – the first step to care”. The Irish Haemophilia Society, in collaboration with the Royal College of Surgeons Ireland, is celebrating World Haemophilia Day with a symposium entitled “Haemophilia – The Future is Now: New Approaches to an Ancient Condition”.
Minister Harris noted the contribution of the National Haemophilia Council to the development of haemophilia care in Ireland.

He paid tribute to the achievements of Dr Barry Harrington, who will shortly step down as Chair of the Council after eight years in the role.

Minister Harris said: “The high degree of co-operation and partnership between the National Haemophilia Council, clinicians and patient organisations, and their proactive collaboration with the HSE and Department of Health, is a major factor in Ireland’s success in providing quality treatment of haemophilia and other bleeding disorders.”

He also praised the tireless work done by the Irish Haemophilia Society in creating a positive and supportive community for people with haemophilia and their families.
Minister Harris stated: “In line with this year’s theme, I would like to encourage anybody living with a bleeding disorder to seek treatment from the health services and to reach out to the Irish Haemophilia Society and become part of that community.”

A number of buildings in both Dublin and Cork which will be illuminated in red this evening to mark Word Haemophilia Day including Liberty Hall, The Dublin Convention Centre, the Mansion House, Smithfield Square, St. Stephens Green Shopping Centre City Hall, The Civic Offices at Wood Quay and in Cork, Cork City Hall and Capital Building Cork.

ENDS

Notes to the Editor

Comprehensive Care Centres
There are three haemophilia Comprehensive Care Centres in Ireland. All three centres are certified as European Haemophilia Comprehensive Care Centres (EHCCC):
· The National Coagulation Centre (NCC) in St. James’s Hospital in Dublin.
· The Coagulation Centre in Cork University Hospital (CUH).
· Our Lady’s Children’s Hospital, Crumlin (OLCHC).
In addition, University Hospital Galway functions as a Haemophilia Treatment Centre for adults and children. The Haemophilia Treatment Centre in Galway University Hospital is certified by the European Haemophilia Network (EUHANET).

The Irish Haemophilia Society
The Irish Haemophilia society has represented people with haemophilia and other bleeding disorders in Ireland for over fifty years. The Society was founded by parents of people with haemophilia and healthcare professionals who came together to assist with the organisation of diagnosis and treatment for people with haemophilia. The chief executive of the Society is Brian O’Mahony and the current Chairperson of the Executive Board is John Stack.

National Haemophilia Council
The establishment of the National Haemophilia Council was established by Statutory Instrument in 2004. The principal function of the Council is to advise the Minister, health service agencies and other persons on any matter relating to haemophilia, on its own initiative or at the request of the Minister or a health agency. The current Chair of the Council is Dr Barry Harrington.